Our Aims

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The Birth Trauma Trust aims to support five main areas that we believe are crucial to families and provide ways of either reducing birth trauma or the giving of support after a difficult experience.

These areas are;

  1. Raising awareness of birth trauma and it’s impact on families
  2. The importance of kind, compassionate and respectful care
  3. Perinatal mental health support following birth trauma
  4. Supporting families to make evidence informed choices 
  5. Reducing Birth Trauma by improving maternity care

Why are these areas important? How can we as a community support these areas and work towards improving them for families?

Raising awareness of birth trauma and its impact

Sadly birth trauma is still little acknowledged or understood. Many women don’t even know that the feelings they are struggling with about their baby’s birth could be birth trauma. Even within the birthing community birth trauma is often not recognised. Healthcare professionals too may miss the signs. Even when it is very clear that a woman or her partner are struggling birth trauma is often not thought to be the cause, they instead can be said to be suffering from postnatal depression or other mental health conditions.

By raising awareness of Birth Trauma and its impact we can help families to access support when it is desperately needed. Awareness of signs of suffering birth trauma allows those caring for families to ask if support is needed. More awareness helps women to understand why they may be struggling with their experience and encourage them to speak out and ask for help. This is important because it means support can be given sooner and enable the trauma to resolved before another pregnancy.

It is important that women are able to talk about the birth of their babies in a safe place where they feel listened to and not judged. It is also important that any woman or partner that is struggling after the birth of their baby is asked about their birth experience, postnatal depression, perinatal anxiety or PTSD can all result from a traumatic birth.

As a community we can all help raise awareness. We can talk about our own experiences, we can listen to the experiences of others. We can also learn more about birth trauma, education means understanding and when we understand we are able to help. Read more……

hjThe importance of kind, compassionate and respectful care

The way a woman is cared for during her pregnancy and birth can have a profound effect upon her and her partner. Sadly a lot of trauma in birth is caused by unkind words or actions, by lack of compassion for a woman’s needs or circumstances and by not respecting choices, or beliefs.

Even in emergency situations trauma can be greatly reduced by kindness and compassion as well as respecting the woman and her partner both in still offering choice but also by care given. Language and the way we communicate with families can either increase or reduce trauma.

After a difficult birth its important that any healthcare professionals who support a woman and her partner LISTEN. This is the single most important thing we can offer a woman who is suffering. Listening enables you to truly know what they have been through, how they are feeling and what is important to them. Listening will enable you to know if the woman or her partner are likely to be suffering from birth trauma and thus enable you to get them the support they need.

Care that is kind and compassionate will not minimise a woman’s feelings or experience. Instead it will move those caring for her to do everything in their power to support and protect her. Sometimes trauma will result from birth, but that trauma can be greatly reduced by kind, compassionate, respectful care.

As a community we can share our experiences and help those who are caring for women know what makes care kind and compassionate. We can open up about what respect means and how this can impact on us. By working together we can help improve birth and also reduce trauma even in the most difficult of circumstances.

Perinatal mental health support following birth trauma

Experiencing a traumatic birth can greatly impact perinatal mental health. Women may go on to develop postnatal depression, psychosis, perinatal anxiety or post traumatic stress disorder. Women who already have mental health conditions such as depression, anxiety or OCD may find their symptoms worsen or they may have a relapse with managing their condition.

Finding support with perinatal mental health can be hard, finding support for a difficult birth even harder. Yet this is crucial for a family. Struggling with a difficult birth experience can greatly increase anxiety about having a new baby, it can impact bonding, feeding and relationships with partners and other children in the family. Support with feelings around a difficult or traumatic birth experience means families being able to open up about their feelings and find comfort and understanding.

Often it has been noted that women who later go on to present with a perinatal mental health issue are rarely asked about their baby’s birth and if this has contributed to feeling anxious or depressed. Studies show that those who have had a baby in a *neonatal unit are very likely to show symptoms of PTSD or even develop full PTSD. We can also imagine the impact of the loss of a baby on a family and the implications this has on mental health. Then of course loss of a wanted experience, maternal injury or illness in a mother or her baby all impact on emotional wellbeing.

So what can help?

In maternity units a culture that acknowledges the emotional needs of families is just as important as keeping women medically safe. Some units have specialist perinatal mental health midwives and bereavement midwives to provide value support. All staff that care for women and families in birth should also be supported with perinatal mental health and bereavement training. Most units will also offer birth reflection or listening services as well as de-brief sessions for those who wish to access.

Postnatal care is invaluable and midwives, health visitors, support workers, GPs and all those who women come in contact with are vital links for families. Continuity of care allows for relationships built on trust which serve as a firm foundation to see that someone may be struggling and need support. Being aware of local services that offer support means being able to signpost families to the help they need.

As a community we can speak out about what families need. Sharing our stories allows us to see what can help support families better. Lived experience shared as part of training can have a profound impact on those who attend. Campaigning for services that specialise in perinatal mental health must continue, as awareness is the first step, as long as services exist to then provide help and treatment where needed. Often with birth trauma providing a safe place that allows for talking about their experience and having the trauma acknowledged goes a long way to reducing it’s impact.

Supporting families to make evidence informed choices 

When it comes to birth, families have a right to know what choices are available to them and then make choices that are right for them and their family. Much comes into play for a family when weighing up the right choice. Everyone has unique situations, family backgrounds, personalities, life history or experiences and beliefs, these maybe cultural, personal or religious. These can all affect the choices they make. It can also mean that the choices they do make may not be the choice that is seemly right for them ‘on paper’. A difficult childhood, a previous loss of a baby, fear or a mental health condition may mean that the choice they make is based on not only what they as a families would like or the situation, but also a previous experience, or out of a need to manage a current problem. How can families be helped to still make informed choices?

Firstly it is important that they are given information that is evidence based. It is also important though that this is given in way that does not become a controlling influence. what does this mean? Information given can be given in such a way that it leans towards a ‘preferred’ option, sometimes the risks can be dwelt on, but the benefits skimmed over. Or it can then be the case that information given is tailored to suit these needs of those providing care, rather than allowing an unbiased approach that enables more individualised care.

It can be especially challenging if families wish to make choices that seem to go against the ‘recommended’ advice. It is so important that families are given accurate, up to date, evidence based information that enables them to discuss with care providers the risks and benefits of the choice they are considering. For families it is important that they really take the time to find out their option and look at the evidence, weighing this up with their own personal circumstances.

Choice in birth especially can be important and help reduce trauma. Even in emergency situations by giving choices regardless of how small they are we allow women or their partners to still feel in control of their care. Often trauma can result from feeling that the experience somehow happened to them with little choice at such a vulnerable time.

If we care for women and families it can be hard to support choices that you personally may feel are unwise or that you would handle a different way. However if the information you have given is accurate, evidence-based and given in the right manner, and a family are clear about what may happen as a result of their choice, then it is important to support the choice made to the best of your ability.

Reducing Birth Trauma by improving maternity care

Our maternity services are under pressure. Funding, staffing and how that care is provided are greatly debated issues. The Birth Trauma Trust values all the hardworking staff that support families during pregnancy and birth everyday often in difficult circumstances. However we also acknowledge that there is much to be done to improve services and the care given. Many of the women we report share that they have felt let down by those in place to care for them. Many have been left traumatised and broken by their experience.

What is needed?

  • acknowledgement that care is sometimes lacking
  • awareness of birth trauma and its impact
  • co-working with families to build/improve services
  • support and training for all staff
  • cultures in units that are women centred and supportive of staff
  • help and support in place for those that have difficult births
  • specialist midwives (PNMH, bereavement)
  • policy, governance and guidelines to protect women and staff
  • clear process for investigations when things go wrong
  • ways for families to feedback their experiences

Improving maternity services is a passionate part of the work of the Birth Trauma Trust. Both Emma and Susanne are part of #Matexp a change platform that is working hard to support improve and changes for all.

As a community we must come together to share our experiences, insights and ideas to make things better.

 

In conclusion. The Birth Trauma Trust hopes that one day women and families will have maternity experiences that are individualised, respectful, gives dignity and allows for informed choice. That puts women, her baby, her family and their needs first. That will mean birth experiences that do not result in trauma but that even under difficult circumstances will help a woman to feel loved, protected and supported. We hope, that the voices of women everywhere will be heard, no matter who they are, what they do, or what choices they make. Why is this so important, because a woman’s birth experience stays with her, it can have a profound effect on her and her family as they start on their journey as parents. All women, babies and families are special and deserving of the best maternity care possible. So join in, get involved and share your stories and your ideas. There’s exciting times a head in and together we can make a difference. Email us at birthtraumatrust@gmail.com

 

*Shaw RJ, et al.(2009). The relationship between acute stress disorder and post traumatic stress disorder in the neonatal intensive care unit. Psychosomatics. 50(2):131-7

 

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